"The End of My Line?" - Just the Opposite: Another DC Blog

And the number of male written DC / infertility blogs grows by one more. This is a big deal as anytime one man takes to the keyboard on this issue it is proof that a significant number of more men are out there statistically dealing with the same issues.

The blog "The End of My Line?" is written by a Brit who with his wife are undergoing fertility treatments and DI is their only option.

US News Article: Who's Your Daddy?

The February 13th issue of US News & World Report includes an article by Betsy Streisand titled “Who's Your Daddy?” with the subtitle “Sperm donors rely on anonymity. Now donor offspring (and their moms) are breaking down the walls of privacy”. The issue hits newsstands this week and features information regarding (1) DI Moms who found each other through the DSR and determined that their kids share a common donor and that many of the kids have medical issues, (2) known vs. anonymous donors here in the USA, (3) donor screening, and (4) the article closes on the emotional void that some DC persons experience.

A DI Dad's Greatest Fears

The greatest fears a DI Dad has, at least for me anyway, is that the donor will try to take my children from me.

I was thinking about this fear the other morning as I was scheduled to take another school tour. I began to wonder what precautions this school takes to make sure that it is only the parents or authorized individuals picking up the children. Granted this question is applicable to all parents, not just DI Dads and DC families, but it's one that struck me.

When I hear donors stating that they are the only true father it scares me. All deference to Michael of Donors Against DI as I know Michael is a donor whose views have completely turned around since he was a donor years ago. While genetically the statement of "true" fatherhood is accurate the use of the term seems to negate or invalidate my role as my kid's dad and the only father they know.

The fear of children being taken away is nothing new to any parent as I stated above but to parents who struggled with infertility, wrestled with the concept of and chose DC you can sometimes feel like this gift of a child is something granted to you only on a temporary basis and especially in the beginning years you keep expectinng for it all to end.

So in effect the normal fears of a child being snatched etc are multiplied by the knowledge that there is a "true" biological sire out there.

Getting Men to Attend Infertility Programs

Years ago when my wife and I were first starting to address our infertility issues we attended several all day seminars and multi-session seminars. As expected the attendance at the requisite insurance and female infertility sessions were packed but the male factor sessions were more sparsely attended (by the men anyways) and tended to be more focused on the highly technical issues instead of the emotional aspects of male factor infertility (MFI) issues.

I recently sent an email to a male counselor that works with the AFA who again confirmed that getting men to seminars is a tough sell but that he is part of an effort to put on a MFI seminar this coming May 6, 2006. Similarly Olivia Montuschi of the UK Donor Conception Network also asked for advice as to how to get men to attend more meetings.

Part of me wants to say the answer is actually simple but I don't think it is. Getting men to talk about their own infertility much less to get them to discuss donor conception appear to be impossible tasks. I think in the end for men to be active in addressing their infertility their desire for a child / family must be greater than their discomfort and the pain of acknowledging the issue.

My question to any men suffering from MFI reading this post is what would you want to see in the way of live programming that would enable you to proactively address these issues? To those wives reading this please ask your spouses this same questions and let me know their answers.

The Yahoo DI Dads groups appears to allow the men that are members the anonymity or remoteness of contact to allow them to participate openly regarding their feelings that perhaps in person some of them could not.

My Thank You to Our Donor

I realized the other day that I have not thanked our unknown donor.

I have read many online thank you’s but all have been from the mom's perspective. They all generally start by saying thank you for the gift of the children and how smart and cute the kids are. Most if not all thank the donor for their gift whether it was wholly based in altruism or only partially so.

While I do want to sincerely thank the donor for each of these thoughts I also want to thank the donor for believing that another man (1) could raise his offspring and genetic heir to the best of his recipient's ability and knowledge,(2) that the recipient father would give enough love to any number of children born with no decrease in quantity shown to each child and (3) allowing me to be a father in the truest sense of the word (beyond the obvious biological definitions).

I cannot say if the donor had any of these thoughts while he was providing his genetic material to the cryobank. I have listened to his taped voice on CD Rom so I do believe he fully understood what he was providing. What he thinks today is unknown. Some donors regret their decisions others still believe in the gifts they provided.

I also want to thank our donor prospectively for hopefully respecting any decisions we make to help our children understand their conception and to help them process this still extraordinary method in which for their lives to have begun. I want to thank the donor for the opportunity given to my wife and I to create a family and to share the love we have felt for these kids even before they were conceived. It will never be our intent to forget him, dismiss or marginalize his contribution or genetic role in our kids's growth or development but at the same time it is our intent to teach these children that being a family is part genetic and part love as demonstrated by our actions. I want to thank the donor for what I hope is his understanding of all these thoughts and wishes.

One additional statement that I believe I need to make is not so much a thank you as a promise. I have been extremely clear on this blog that I realize the use of DC whether it be DI or DE has created for some Donor Conceived Persons an irreparable loss regarding 1/2 of their histories. Our intent was never to bring harm or pain to our kids and as a dad it is my pledge to do everything I can to help my kids if they too find themselves in such pain. I believe I can help them while I recognize the use of DC created the issue and they themselves will ultimately have to come to terms with the issues surrounding their conception.

The ASRM Letter and It's Effects

The NY Times Letter to the Editor that I referred to in an earlier post has started a snowball heading downhill in parts of the DC community. Many individuals including Donor Conceived Persons and parents are grumbling about the letter written and want to respond.

My own views include that references to regulation are self serving as what regulations in their right mind would (1) not standardize testing / screening procedures and (2) allow donor specimens to be sold with the possibility of creating numerous unchecked half siblings, among other issues.

It will be interesting to see how many rebuttal letters end up at the NY Times and how many they will print. Stay Tuned...

My Last Post Was Number 100 and What This Blog Has Become (to me at least)

I started this blog on August 8, 2005. Per BlogTopSites (BTS) through today I have had 5237 hits with 2889 of those being unique hits since I registered the site in mid September (cumulatively measured on a weekly basis). I am unsure if the state of this blog is what I envisioned when I started this. It has turned out to be more than just my thoughts and experiences of the daily goings on of being a DI Dad which begs the question of what I think it has become.

My thoughts on this are three fold. I hope I am first doing what I first hoped for and portraying honestly my thoughts and feelings about being a DI Dad. Secondly I hope I am providing on this blog some sort of resource as to other Donor Conception related sites and news and my reactions to them. Third as a result of my beginning this blog I have become more involved in the DC community which is a result I did not expect. But one I sorely hope I am worthy of.

Two New Australian DC Blogs

Within the last few days I have discovered or been notified that each of the following Australian Donor Conception related blogs have been created:

Diaries of a Hopeful Dad To Be

This first blog is by an Australian who with his wife are DI to conceived their hoped for children. This is one of the very few DI Dad blogs I have found written and one that is reporting from the perspective of a husband going through DI with his spouse. The blogger goes by the name of Dynamodad or DD for short. To date DD has only made two posts so you can follow this blog from its beginning.

DADI- Donor Against Donor Insemination

The second blog was announced to me within the comments to one of my recent posts where the blogger was replying to my post of one hopeful dad's views on donor terminology . The sub-title of this new blog states:

"No, not a contradiction in terms. I am a former sperm donor who is now totally opposed to the practice of donor conception. This is my story...."

What is also unususual for some blogs is that the blogger discloses fully who he is by posting his actual name. As stated in his subtitle he has named his blog while playing on the spelling of the word daddy. The blog currently contains no posts so we will have to see if this former donor is looking to make contact with his biological offspring or not and his expanded views on this topic.

Revised Call for Donor Conception Blogs

In my post of two days ago calling for web addresses for all donor conception related blogs I forgot to ask if you can categorize your submissions by type. Suggested categories are below. If you think there shoud be additional catagories or if any I have suggested need to be altered please let me know. Blogs which otherwise are termed TTC (trying to conceived) I am suggested we categorize based on the bloggers overall category. These categories are just off the top of my head.

Suggested Catagories (alphabetically)

DI Dads
DI Moms
Donor Conceived Persons
Donor Egg
Donors For / Against DC
Married Hetero
Married / Partnered LGBT
Single Dads
Single Moms

NY Times Op-Ed Column Submitted & ASRM Letter to the Editor

I just submitted my Op-Ed column to the NY Times via e-mail. If I hear nothing from them within one week it means they are not using the column and I can publish it here. Should be interesting to see what happens. The column was again written as a result of Amy Harmon's January 20th article re Sperm Donors and the Cryobank industry.

It is possible my column will be seen as timely as today in the Letters to the Editor Section was a letter also in response to Ms. Harmon's article by Joseph S. Sanfilippo, M.D.President of American Society for Reproductive Medicine where he made two points that the (1) the medical specialty's position is not one advicating for anonymous donors (2) the industry is already regulated at the federal and state levels and by the industry itself, and (3) "There is no clear scientific evidence to tell us that being a known donor, or an anonymous one, is best for every donor, patient and child."

Did I Suffer a Heart Attack?

The simple answer is No. But was it a wake up call to get in better health? Yes.

Wednesday afternoon, January 25th, at work after walking up several flights of stairs fr the third time that day, which I generally do not do, I started exhibiting many of the classic symptons of a heart attack. While I felt some pain in my chest it was the confluence of feeling dizzy, naseous, and having a throbbing pain in my left arm which did radiate down to my hand that sent me to the emergency room.

Over the next 24 hours I went from the ER to a cardiac unit to having undergone a stress test complete with a nuclear isotope being injected into my system so they could take pictures after the my run on the tread mill and once my heart was at rest. At 41, the target heart rate I was to shoot for on the tread mill was 152. I exceeded that and got my rate up to 190 for the last two minutes which were hell. Nothing in my blood work indicated my heart had suffered an angina or scarring so they are unclear as to what happened other than my overexerting myself.

I do no exercise whatsoever other than playing with my kids. My weight of 145 is reasonable for my height 5'6". I don't have high blood pressure but my cholesterol is just over the desired range. In short to look at me I am not a candidate but to know how I eat, my family history, and that I don't exercise I am a prime candidate to leaving my kids fatherless and my wife a widow.

My warning is simply this, re-examine what you do, check yourself out (without my radical method of scheduling a stress test) otherwise these kids we all have and want will not have you there for them. If not for you do it for them.

Searching for Donor Conception Blogs or Websites

Do you know of a website or blog maintained by an individual or couple (any permutation) attempting to use DC to start a family? Or perhaps a family already started where a child or an adult is a donor conceived individual? I know but a few and they are linked in the sidebar on this blog's index page. I am also interested in finding as many bulletin boards that have existing discussion threads that deal with donor concepton be it donor sperm or donor egg.

I ask this as I see many many infertility blog rolls but finding the DC related ones is tougher to see and I feel a central list should be started to allow for one more avenue of contact within this community.

Please contact me via this blog post which will have its own permanent link shortly on the sidebar.

Thanks.

Draft Op-Ed Column & Lack of Discussion re NYT Article

I am currently writing an op-ed column I plan on submitting to the New York Times. I was spurred on by the article published this past Friday on DI and the cryobanks. It is draft and I have asked a couple of individuals to look at it. I can't post it here first as the Times will not print previously published articles.

While I was overall pleased with Amy Harmon's article I and others have been very disppointed with the lack of responses or commentary in the DC community, be it on the Yahoo discussion groups or on other infertility boards. I also realized that after a week the free access to that article will cease so I need to post the text where folks can access it later. If anyone saw commentary regarding the article outside the yahoo discussion groups please let me know.

Donor Terminology: One Man's Definitions

Many of the topics discussed on the DI Dads yahoo group repeat when new members join and existing members give advice or reply to "new" questions. A few days ago one new member ( a hopeful dad-to-be) gave his definitions and comments in response to another member's thoughts on using the term "biological father" as opposed to "donor".

In order to respect the privacy of the members of the DI Dads group I generally don't quote comments made there but I thought it worthwhile to share in this instance (with the new member's permission) as they represent many (not all but many) DI Dad's views and my own.

"To me a donor is someone who is willing to give something which is only a part of themselves whether it be money, an organ, time or sperm. But a (good) father is someone who devotes himself entirely to raise a child, takes the good with the bad, gives guidance etc..

Personally I do not like the term "biological" if somebody mentioned that word the first thing that would come to my mind would be "warfare"...it almost sounds like a disease ;)

I agree with you the word "Donor" would seem more appropriate at least until kids come to an age of being able to understand more. Plus when you look around you, I think that getting someone pregnant is truly the easy part, the hard part comes with dealing with the pregnancy and the child once it is born and beyond. There are plenty of so called"fathers" out there that are no more than just donors in reality when you look at how little they share with their kids."

If my posting of these comments offends any of the DI Dads I apologize and I will refrain from doing so in the future and limit myself here to my own responses to general discussions.

DI Mom vs. NECC continues...

The subtitle on this DI Mom's website / blog reads "Why sperm banks need more morals than second hand car salesmen". The buzz is beginning to pick up regarding this blog and its battle to warn or expose NECC for false advertising at least in regards to the donor sperm she bought from NECC.

Readers posting their comments over at Yahoo's DSR_Discussion group are wondering what set off this expose and where is it going. A couple of readers are supporting DI Mom's right to this battle others believe she is disgruntled but without a reason why they are unsure as to the veracity of her statements. Again I am captivated to see what she writes next. He last post on Jan. 23rd indicates that she will soon divulge info regarding the progeny of her donor which should offer more than a clue as to what occurred to warrant her risking protracted legal troubles regarding more than just her using NECC's name as her web domain.

Where I have seen other donor recipients take notice with the actions of their cryobanks I have not seen any other action like this one where the blogger is simultaneously issuing notices to the public regarding what she sees as un-business like and unethical practices directly challenging the cryobank in question. I wonder how much more attention would have resulted if Amy Harmon, of the NY Times, knew of this blog before her January 20th donor conception was published.

One DI Mom's Battle with her Cryobank

The title of the blog is "NECC and Sperm Bank Accountability". The domain name the blogger has taken is the fully written out name of the New England Cryogenic Center which if used by a potential customer of NECC would lead the viewer to the website in question. The title to this post links you directly to this DI Mom's blog.

Without commenting on the content of the blog I will post the opening statements posted on January 16, 2006, letting the blogger's own words describe the site she has created:

This site is dedicated to one woman’s experience of using the New England Cryogenic Center’s Sperm Bank. Who is the woman? Well, at the time she was a single, professional, hard-working, optimistic, honest and decent person. She’d reached her mid-thirties childless and had made the agonizingly difficult decision to become a single mother via donor. That woman is me, and the reason I established this site is because I believe that choosing a donor through the NECC Sperm Bank was unarguably the very worst decision I made in my life! My huge regret over using the NECC has led me to set up this website to warn other women who are considering using the NECC.

As this blog is only a week old the buzz about it is only beginning to reach the DC related discussion groups and so far the few posts suggest awe as to what this mom has undertaken. She is apparently not looking to defame NECC but rather to warn other families of her experience and to not use NECC. It will be an interesting blog to watch and see what happens. Any family created using NECC or donor who worked with NECC should undoubtedly want to read this blog.

Pending Donor Conception Related Nationwide Press Coverage

In addition to the NYTimes article of this past Friday, January 20th, there are currently two other pending press pieces in the works regarding donor conception issues:

1) An upcoming USNews and World Report article on the cryobank industry is expected (it was thought to be in either the 1/16 or 1/23 issues but so far no trace).

2) In February the long running and venerated CBS news magazine "60 Minutes" will be running a segment that will refer to the Donor Sibling Registry and related topics.

3 & 4) Additionally look for the DSR in the March Issue of Teen Vogue as well as the June/July issue of Child magazine.

A Dad's Worries About a Sick Child

My son has been sick for two days with a fever and ear ache. I do not look at him as someone else's son as it is me that is holding him and comforting him and trying to convince him to drink more fluids.

This cold will pass as will many others but when I read about diseases that pass from donors to other donor conceived children that could have been prevented by increased screening techniques I worry about what could be out genetically waiting for my kids that I can do nothing about. I can only wait and pray that the donor was truthful in his bio and that the cryobank did all they could to ensure all possible diseases markers were screened out before offering this donor onto the market.

Are You My Sperm Donor? Few Clinics Will Say

Today's New York Times On Line (Fri., Jan. 20, 2005) features on page one (at least at midnight it did ) a new article by Amy Harmon with the above hyper-linked title. The article focuses on the cryobanks and donor anonymity issues and features interviews with recipients (a genetic mom and social dad), donors, donor conceived adults, scholars, social workers and industry representatives. The article also addresses all the related topics discussing screening issues, donor-recipient contact, donor-donor conceived contact, industry fears of decreasing available donors as well as sperm bank regulation among others. Considering the breadth of possible focuses and issues she, Ms. Harmon, managed well to hit most if not all the issues surrounding DC that start from the cryobanks on outward.

This article is the third of Ms. Harmon's in effect now series of articles addressing the issues surrounding donor conception. The first, published Oct. 13, 2005, was titled "First Comes the Baby Carriage" which focused on SMCs and same sex couples looking to have children. The second on Nov. 20, 2005 was titled "Hello I'm Your Sister Our Father is Donor #150" and focused on DC persons looking to make mutually agreed contact with half-siblings or their donors with an emphasis on the Donor Sibling Registry.

DI Dads Yahoo Discussion Group

I am a member of the Yahoo DI Dads discussion group. In its short existence to date I believe it has become a valuable resource to men considering DI as part of their family planning or for men who have already begun using DI or those who are dads via DI like myself. As a matter of disclosure I will admit I am one of the two moderators of the group. I am finding that the men who have joined to date really are interested in not only getting answers to their own concerns and using the group as a platform to vent but are generally interested in helping their fellow group members with their issues as well.

The group was set up as a membership required group to allow the members a format and location where they can go and be assured that only men like themselves are in attendance and able to respond from common experiences.

If any man is interested in joining this dialogue please link to the discussion group via the title of this blog post or from the link provided in the side bar.

Virginia’s Attempt to Limit DC to Married Heterosexuals

The post title links to a Jan. 13, 2006 post (on a blog named the “Gay Opinion Blog”) regarding specific Virginia legislator's blatant attempt to limit via legislation the SMC, gay and lesbian communities’ access to DC and ART procedures. Once again the conservative right is trying to define who and what makes up a family. I can’t imagine the disgust this parent must feel knowing that if this bill was already law they would not have the children they have just because some legislator wanted to discriminate against the gay and lesbian community. At least DC Persons who are against DC are straight forward that all DC should be stopped. This topic has been discussed heavily in the past two weeks or so on the Yahoo DSR_Discussion group.

Views of DC from Outside the Community Regarding the Well-Being of Donor-Conceived Children

The title of this post links to a December 2005 post titled “Donor-Conceived Children and Well-Being of Children”. The post itself is posted on a blog titled “Alas”. The post references separate posts made on the Family Scholars Blog and one writer’s focus on the negative effects of DC. Reference is made to various studies of DC children of single mothers. What makes checking out the post worth while are the currently 72 comments posted and the cross discussion posted by the readers. Granted the individuals posting comments go off topic quite often and I found many of the comments posted to be quite conservative but some give DC a fair shake as not being perhaps the sole reasons behind negative issues various DC Persons might have. It’s worth checking out just to learn more what some of those think-tank type folks outside the DC community believe.

Whose Kid Is This & Can I Give Him Back?

Sometimes when your kid is being somewhat bad you wonder whether the donor was like this when he was a kid. I've read books where for some dads like me this feeling at times can become so strong that you want to say let the donor deal with this kid. I am not at that point today, other days perhaps, but you wonder what fun the donor put his own parents through.

What prompted this was my son deliberately ripping a page in a new book I just gave him and that I just read to him out of. He has done this before. It was titled "Curious George and Friends" (ISBN: 0618226109) which we had borrowed from the school library and read so often that we bought a new copy off of Ebay. What probably happened was his wanting attention and being upset that I stopped reading and had gotten up to shower and shave to start the day. Still I took the book away and let him know how disappointed I was by this behavior. My response was unfortunately a bit more dramatic as for me this is a big deal as books are very important in our home (and as I said above he has done this before).

Anyhow I don't want to make this child the donor's problem (at least not today - and I do love him dearly) but you wonder what he, the donor, was like as a child and how much is nature vs nuture. In the words of the great philosopher Charles Brown: "Aauughh !!!". Just another fun morning as a DC parent.

Yet Another "Telling" Conversation & Discussion

This past Saturday night we spoke with the mom of our kids' half sibling. Just basically a catching up conversation. We spoke briefly regarding the "telling" conversation mostly in regards to what is being discussed on the discussion groups out there on the topic. Currently the discussion groups are not focused on this topic

I forgot to mention to her that the UK DC Network has a number of pages devoted to "How to Tell". The DC Network has actually been developing such a project for a while now supported by UK Government funding. The link is to the project description as I cannot find the actual how to tell pages at the moment.

We actually reached a sort of semi agreement although we did not formally term it a decision as such and like anything it could change. When any such meeting occurs between the kids they would be introduced as having a common donor who helped both mommies in bringing the kids into this world. That will be our definition of half siblings in effect. It is unclear if we will even use the term half-siblings although I think the term should be introduced as well in some form. We definitely agreed that terminology like sister / brother is not applicable as the kids have no social relationship warranting such terms

Over time as the kids get a better understanding of the birds and the bees they will discover the connection as to what half siblings means in more depth we figure. Knowing my son his daily routine of randomly picking a word out of the dictionary will by freak chance be sibling and that throw this idea for a loop.

The next evening I again asked my son who helped mommy and daddy make him and he said "the donor" in a way that evoked "dad I know this and I know you know I know so why are you asking me again?". I then expanded the session by stating that the same donor may have helped other families to which he brought up Fred, Fud, Ted and Tud again (see my Dec 11th post). Although this time the list of kids was expanded to include Did and Dud (actually Did was discussed apparently back on Dec 11th). Not being thrilled with a half sibling being named Dud I stated that he should recall that Dud's full name is Dudley to which he laughed and we ended this telling session.

The Power of Oprah - "Night" by Elie Wiesel

This afternoon Oprah Winfrey announced the 57th book title in her Book Club, Night by Elie Wiesel. Yesterday, it was ranked # 34,424 on Amazon's best selling titles. This evening it is #1.

I first read this book when I was either in junior high or high school and I now recall the raw shock at what I was reading. Tonight I read it again in full as its only about 110 pages including the introductions in my copy. The power of the narrative is still amazing to me. My wife, who at first was amazed how fast I read this, asked me if I was shocked by the horrors described within. My answer is yes and no.

Yes as I am amazed how one individual could recall the level of detail he put to paper. No due to my involvement as a amateur genealogist and my work arranging for the translation of a Yizkor Book of my grandfather's village in Moldova where I read many many accounts of death marches and killings equal to that described in Night.

Oprah has called for "Night" to be required reading in every high school and it should be as there is no better synopsis of the horrors that humans can bring upon other humans. Oprah's essay contest asks if the book has relevance today. To that I offer one word: Darfna.

Donor Baby: A Sperm Donor Journey

Tonight I found a new DC related blog written by a 29 year old single woman detailing her personal journey into the world of sperm donation and parenthood. The blog started in November 2005 is less than 15 posts old. The woman refers to herself as “Donor Mom To Be”.

In her November 8, 2005 post titled “Interviews Abound” Donor Mom describes the complex process of finding the “right” donor. Apparently she went through a lengthy interview process of known donors. and selected a married man who has kids who is actually the closest to her distance wise of those she was considering. One of her farthest interviewees was interested in becoming a lifelong co-parent which she had no interest in. Her post closes by indicating her pleasure at her selection as well as her observation that the chosen donor’s kids are gorgeous.

I wish Donor Mom good luck and I look forward to following her journey.

Terminology: Substituting “Biological Father” for “Donor” = Feeling Threatened

Tonight I received an e-mail from a woman I met while posting on the DonorMisconception yahoo discussion group. The sender thought the information important enough that any potential US based national DC support group would want to highlight it. Within her e-mail in addition to a paragraph header labeled "God Bless Mummy and Donor" was text that referred to a member of Tangled Webs’ call, herself a donor conceived person (DCP), for replacement of the term “donor” with the term “biological parent” in an Australian set of laws currently undergoing reform. Putting aside the reasons espoused by this DCP (valid they may be and discussed below) was my own immediate threat level being elevated. It was actually amazing how fast I found this threatening. Even though this was a call to change a statute that would likely never affect my kids or me or our “donor” I found it threatening. Amazing.

The e-mail referred to an Australian blog of woman who attended on November 16, 2005 an event hosted by a group called the Rationalist Society of Australia, where a Professor Marcia Neave, Chair of the Australian Victorian Law Reform Commission, spoke about the regulation of artificial reproductive technology (ART) in Australia. The e-mail refers to the DCP’s outcry that to leave the term as donor is insulting to the children conceived via DC. The writer (and I guess the TW DCP) felt that to leave the term as donor it promoted the withholding of information from the children and protected the interests of the donor when the focus should be on the child’s or donor conceived adult’s rights.

Again I don’t have an issue in theory with the position of the woman who sent me the e-mail or the DCP member of Tangled Webs but I was just struck by how fast I felt threatened by the use of terminology. Perhaps it’s a silly response considering I read much of this stuff everyday but there it was.

My Cryobank Regulation Wish List - Part 1

To date my children have but one known half sibling. It is unknown how many more may be out there. We know the donor was active for several years so it is possible many many vials were sold by the cryobank. Their site to date, I believe, only reports one pregnancy depite my reporting two.

While it is highly unlikely my kids would ever unknowingly meet and become involved with a half sibling (whether this half sibling was told of the DC conception or not) the possibility alone seems to cry out for regulation especially since there is nothing, regarding this donor, to prevent multiple live offspring.

My own kids are thankfully healthy but other than a donor's health bio stating he was screened for several diseases what proof do I have of these screenings.

These are both questions any potential DI recipient woman or family should ask themselves and their cryobank. The answers are not easy to determine or put into place.

My own views are that the number of live births must be tracked, reported, and subject to audit verification by an agency set up to do so and to protect the privacy of the info reported. With repect to screening of diseases I would wish that the donor be tested under their donor number and that image copies of the test results be available to the recipient if they wish to buy vials from the applicable donor.

Again these are but only two issues surrounding the cryobank industry operations that I believe I would want regulated if I were to be looking to find a new donor today.

Having Another Donor Conceived Child?

My wife and I would very much want to have more children. Our decision not to is not DC related but a financial one. Living with two kids in NYC is not cheap and to add another would not help. And this does not even address the cost of a DI cycle here in NYC which could run between $1500-$2000.

I have wondered what solace if any donor conceived persons get from their full siblings that aids them in their times of identitiy crisis. Of the DCPersons I have met a few had siblings but I have heard little of whether this is a help or a neutral factor. When we had our son we purchased enough vials to ensure that we would be able to conceive at least one sibling as we knew we wanted to ensure he had at least one full sibling in the world who shared his genes, history (albeit part through Mom, part adopted through me, and then part missing) and a common point of reference, us, their parents.

Again as there are far to few studies out there of the mental affects of DC there are far less dealing with the benefits to the DCPersons of having at least one full or half sibling out there.
We still toy with the idea of a third child but like any normal family it first comes down to money which is sad but perhaps for the best as there are too many unanswered questions that are far more important than money (or even just our desire to have more kids.)

Which Tribe of Israel is our Donor?

I mentioned in my December 22nd post that my children's Jewish priestly / tribal class follows that of the donor under the views of the Conservative Jewish Movement (under which my immediate family practices). Well this past Friday I asked our cryobank to ask the donor if they find him (due to our lifetime photo request) which tribe he descends from if he knows.

This is important to me because before my wife became pregnant with our son I made a promise to go to morning prayers, Shacarit, everyday if she became pregnant. Once she did become pregnant I started and for about a year I kept this promise. During that year my own connection to my religion strengthened.

Originally there were 12 tribes of Israel. Of these 12 only the Levites were called upon to become G-d's servants among the Israelites. Of the Leviim only Aaron (the brother of Moses) and his children were called upon to act as the priests or Kohenim. The remaining Leviim became servants to G-d in the Temple. Not subservient to the Kohanim but posessing different roles in the Temple. As time went on the remaining tribes disappeared (a simple and inexact explanation) and came to be jointly referred to as Israel or Yisroel. The word Jews by the way is derived from the tribe of Judah.

In the present day the distinction between the tribal designations is nominal outside an individuals participation in actual services or prayers. But as I have stated in my prior post I want to try to get the correct info before a time comes that my children are active participants in their religion.

The cryobank stated, upon confirming that they received this new request, that if they make contact with our inactive donor they will ask my question but as of yet he has not responded to their inquiries.

DonorMisconception

Lately I have been reading the posts on the Yahoo Group DonorMisconception. I was invited into the group after I attended the Toronto DC Symposium. I don't neccessarily agree with all that is stated in the posts but I find the views and comments required reading in my DC education. The group’s title page states :

"Our bias is towards supporting and extending the legal rights of the people born via such procedures as well as addressing the rights of former donors. The founders of this group believe that, ultimately, gamete donation in all its forms should be legislated against or, at least - in the interim - more stringent regulations should be enacted."

I have found the group to be full of impassioned people including and formed by but not limited to donor conceived persons (DCP). The group was started by DCPs as a forum that they felt was not being provided on other platforms where they could discuss and put forward their views that DC should be replaced by something less painful to the offspring' or 'donor conception should be banned altogether' or 'donor conception has created a great sense of loss' etc. These persons felt their views were relegated to the back burner as opposed to infertile couples who desire to have children resulted in decisions to use DC.

One DC affected class of persons I learned about here are Donor Wives whose husbands either donated before their marriages or during. In these families the donor wife may have to come to terms with a family the donor is now part of (via their dc conceived bio / natural offspring if contact is made and accepted) which the donor wife has no blood or marital connection to other than through their spouse. This may be especially complicated if the donor was a known donor.

Again I don’t necessarily agree with the views of DonorMisconception and I still believe our decision to use DC was a good one. The question is how good a decision will it be for our kids.

DC Adults and any future US based Donor Conception Support Group

I should start out by stating the following are my own views and not that of anyone else or that of any group I am part of....

The creation of any US based donor conception support group must at its inception find a balance not only between support and any advocacy positions but also a balance between serving the traditional constituency of the parent(s) of donor conceived children and that of donor conceived adults.

Providing support and recognizing the issues of concern to the donor conceived adult community is vital to the success of any support function for a number of reasons. One of the foremost in my view is that it shows the younger donor conceived generation that the generation before is not forgotten and that by the point they will be at that stage of life, whether they feel the losses associated with DI or not, that the support is there and has been there for some time.

Making such support available in greater percentages also serves to further legitamize that their pain is real in the minds of the public and will help lessen the associated stigmas that still exist in our society. That is not to say that without such recognition that the pain is not real. It is just that if the public does not see the donor conception community taking care of its own people the public will continue to state that no problems exist and not feel or believe anything needs changing which which only strengthen the positions of those who want no further regulation of the donor conception industry.

Today I thought I lost my little girl................(blog post # 75)

She's ok but this is what happened....

My son woke me up at around 615am and after getting him juice I went into their room to get his yellow blanket. His version of a woobie. After finding his blanket I turned to my daughter's crib and my life almost ended. My 18 month daughter's favorite blanket was wrapped around her head and face. I pulled the blanket from her face but it looked like she wasn't moving. After a millisecond I saw and felt her breath and her body moving but I was already trembling. We had let her sleep with this blanket for the last few months and had never seem it wrapped around her face so we continued to let her sleep with it.

I went back to the living room and held my son and started to cry and I explained why I was upset and that he and his sister must never cover their faces when they are going to sleep. He told me he did not like me talking like that. I told him I was better and that I loved him and his sister very much.

She awoke a few minutes later and appears fine but for now on after she falls asleep I am taking that blanket out of her bed. I don't want to risk ker live or be scared like that again ever.

Friend’s Comments Regarding When to Tell the Kids of DI

On New Year’s Eve we had friends over with their 5 year old daughter for dinner and an early rendition of the ball dropping and bringing in the New Year. We turned the clocks ahead so that 7pm became “midnight” to allow the kids to get the experience of counting down the clock, throwing confetti and singing Auld Lang Syne.

These friends are close friends who we have known for a number of years and who are quite familiar with our infertility issues and the conception history of our kids. At one point the conversation turned to donor conception issues regarding what I know of the donor and the existence of a half sibling. We got into a brief discussion of the terminology and the husband’s thought that the term “half sibling” ought to include the term biological as his feeling was that to leave it out was to imply an existing social connection. I think those who are involved in the DC community take it as a given that the term is “bio only” as it is stated and that the term does not indicate if kids have met and begun forming some sort of connection.

The conversation then turned to our friends’ surprise that we have already told our 3.5 year old son that a donor was part of his conception equation. They seemed to think that we would tell at a later date or that later would make more sense to their thinking for the child’s benefit. We explained that the research we have seen and read indicates the earlier the better as to allow the info to just become part of who the kid is. I don’t think they bought that info (if they are reading this I am sure I will have confirmation whether I interpreted their reaction appropriately).

We also discussed how the whole issue of DC adds another layer to the kid’s eventual dating patterns and things to confirm before becoming real serious about a romantic relationship. Granted on one hand discussing the future dating rituals of a current 3.5year old is weird. But yes where we only had to confirm if our dates are aids-free my kids will need to be upfront regarding their DI beginnings to elicit a response as to whether their date was also the product, hopefully not, of DI to ensure no half sibling issues exist. Granted the odds are infentesimal but who wants to take that chance.

Needless to say our dinner conversation was anything but light fare but any discussion of these topics I find quite interesting

Topic: Our Story

This post will act as a central link page to all posts categorized by this topic.

2005-Aug. 9 How I learned of my infertility problem.....

18 Months Old

This week my younger child, my little girl, turned 18 months old. I still can’t believe it and that in 6 more months she’ll turn 2. This is a magical age for a little kid. They are really walking and babbling up a storm. They understand you pretty much fully and they prove they are real little people

Today my wife brought both my little girl and her brother to my office for a brief visit so my co-workers could see how big she has gotten before we all went to the holiday train exhibit at the Citigroup Center here in Manhattan. As soon as they entered the office I heard, from across the floor, both of them saying “Where’s Daddy?” The sound of your own kids asking for you and saying “Daddy” for the most part makes your heart melt. I will admit though that after any three day weekend home, hearing “Daddy” twelve million times, that I’ll be waiting to get back to work. It doesn’t mean though that you ever want to stop hearing those words.

Every morning, my daughter wakes up at 5:30am give or take a ½ hour. I usually don’t even need the alarm on my phone to wake me up. As soon as she is awake it starts…“Da..dee” …“Da..dee”. It doesn’t stop until she sees me open her door and walk in and then I get that million dollar smile and a hug that I treasure every day.

My office-mate actually asked if my daughter knows any other words. She does, but none so sweet on the ears. Happy New Year !

A Dad Someday

I discovered this past week one of the very few infertility blogs I have found written from the man’s point of view. The blog is fairly new as it was only started in early to mid December and the blogger has only posted 11 entries. So if you are interested in following one man’s (and his wife’s) journey from the “start” you can catch up pretty quickly. So far the blogger has kept his posts directly on topic which is something I have not always done.

While reading of the posts I am quickly reminded of all the issues we went through and I wonder how I would have put my own thoughts down in a blog had I started one at that time. I got a kick out his discussions regarding “producing” for a semen analysis and what goes through your mind. Looking back it was worth the effort to try to produce my own genetic material for our IVF cycles but I would not trade the kids I got for any amount of “what ifs” or cash. Although we could sorely use the cash.

I have provided a link to this blog as well as a couple of other infertility blogs written by men in the sidebar Infertility links section. As there are so few male focused blogs out there on this topic it is important to recognize each of these men for putting their thoughts out there.

I wish them each luck and offer a prayer that they and their spouses reach their goal of parenthood within the coming year.

Holidays, Family, Friends, Life Events and Infertility

Tomorrow morning I will be attending the Brit Milah (the Bris) of an infant boy born 8 days ago to friends from our synagogue. Until my wife became pregnant 4.5 years ago I could not imagine attending such a ceremony without the emotional pain of our infertility. That same pain colored each and every holiday season and how we reacted to invitations from family and friends to parties and life events.

It is so easy to put that pain out of mind when you are changing the diapers and chasing your kid through a social hall to keep him from tripping or spilling something on somebody's favorite suit or dress. The truth of the matter is that there are so many other couples going through that same pain now during this Chanukkah and Christmas season and through everyday events. To those folks I echo the words of a friend's blog "Wishing for a Baby" that this holiday season is almost done and perhaps you can look at the new year as a new beginning and a fresh start in your travels down these roads and that hopefully within this new year you can also lose yourself in the next phase of your lives and put the pain behind you.

Half Sibling Terminology

As I have stated in earlier posts my kids have so far one half sibling found via the DSR. A current topic on the main DSR yahoo discussion group is that of sibling related terminology. This is a topic we have been dealing with again recently as we have traded a number of e-mails and phone call with the half sibling’s mom on this exact topic.

At this moment my older child (at 3years 8 months old) fully knows that he has a mommy and a daddy and a donor. He knows the donor helped him and his sister be born into this world. Their half sibling (still not yet 3 years old) is not fully at that stage of understanding regarding the donor's role or that why she does not have a daddy. At this point neither family is using the terms brother/sisters as the kids have no relationship to each other and at this point don't even know they each exist.

Our issues at this point include (1) what do we each feel comfortable telling the kids in light of their own understandings of how their families are structured / comprised and (2) what each child's maturity level is to understanding the concept of half siblings via common donor. As I have stated in earlier posts my wife would rather just tell our son that he is meeting a half sibling after ensuring he understands what that means but that may be unfair to the half sibling who has yet to fully comprehend even why her family is anything other than just a mommy and me family. The last thing I would want is to create any confusion for this child. Nor would I want to create any conflict between the kids where they might argue “what a family is” knowing what they have as opposed to each other’s family structure. Note that 3 year olds (plus and minus) do not exactly have arguments or discussions but rather statements of fact as they see the world and then they leave with what they think the other side said which more often than not is a misunderstanding of what the other kid intended.

It’s so hard to discuss this stuff by e-mail and we should discuss it more via phone but when there are competing lives and issues finding time is a trick. At the same time where I can write about this stuff with relative ease I forget that not everyone is as comfortable at the keyboard and e-mail time delayed conversations are never great. Neither family I believe wants our only discussions to be on this topic but it’ so easy to get stuck.

Much of what I wrote above captures the point that we are at. I am not looking for feedback as I am just taken by the fact the online DSR discussion is somewhat current with our own.

Judaism’s Priestly Classes and Classifying Children of DI

While trolling the web for donor conception related sites I happened upon the blog of a woman named Mel from Houston who with her husband have been dealing with infertility. What struck me was the title of her most recent blog post “Infertility in the Torah: A Jewish Perspective on Assisted Reproduction Techniques (ART)”. I also learned from her blog post that my children probably should not be considered Levi’im (as I am through my father) as I have no idea of our donor’s priestly classification. I partially addressed this topic in my earlier post regarding the Conservative Jewish position on ART.

Mel’s blog post recounts her D'var Torah at this past week’s Shabbat service where generally the speaker discusses the content of that week’s specific Torah reading. Mel decided however to address in general the fact that each of the Jewish Matriarchs, Sarah, Rebekah, and Rachel all had a difficult time fulfilling the commandment "Be fruitful and multiply, fill the earth and subdue it". [Exodus / Bereshit 1:28]. In short Mel discussed their battles with infertility. Each Rosh Hashonah the Torah reading recounts Hannah’s infertility and her eventual gift from g-d of her son Samuel (who became one of Israel’s greatest prophets.) During our own infertility battles this reading always brought my wife to tears during the service.

In Judaism no matter what movement a Jew belongs to (Orthodox, Conservative, or Reform) all Jews are classified as Kohanim (priests), Leviim (teachers, spiritual leaders), or Israel. The classification is mostly seen each Shabbat when only Kohain can say the first blessings during the Torah readings. The Leviim go second and then Israel. The classification or status passes through the Father as opposed to the Mother (i.e., if your mom is a Jew so are you). As I am not the biological father to my kids this issue has interest to me. According to the Conservative Movement’s position that technically the donor is the father and I am only the agent for the father ... therefore I should have realized that my kid’s priestly status would actually follow that of our unknown donor. So far as his agent I have treated the kids as following my own Leviim status which is not correct but what I have done. As my kid's have not been called to read from the Torah yet no sin has been comitted as far as I know. Prior to their Bar and Bat Mitzvah's they will be told that they must treat themselves as Israel for fear of committing a sin unless I can determine the donor's status.

Getting back to Mel’s blog post I recommend it as great little summary of infertility in the bible and primarily one Jewish movement’s perspective on treating infertility.

NYC Transit Strike - Day 2

Again I got lucky and got a cab to work. I again walked home with no issues. My intelligent son at one point today apparently dropped his pants and made an impression with his butt in play dough. I'd like to say this was his way of potesting against the strike but he also told my wife he is bored [supposedly from being home from school already.]

One of the more telling events today that showed the impact of the strike was that one of the city's leading high end department stores, Bloomingdales, closed it's doors at 6:00pm due to lack of customers, who were more concerned with getting home than shopping, 4 days before Christmas and Chanukah. Granted their own staff needed to figure out their commutes home as well. The lost revenue at this most important time for NYC retailers will be amazing.

NYC Transit Strike - Day One

Not directly DI related but part of our life. My commute was not too bad as I caught a cab about 10 blocks from our apartment (we live and I work all in Manhattan.) About 60% of my office made it into work. I had to walk home which took about 45 minutes. The East side was close to gridlocked. People on the streets were in good spirits but the drivers stuck in traffic were not too thrilled. The weather while cooler at night was not too bad and I must admit my Lands End down coat (tailored as a rain coat and not the Michelin Man) kept me quite toasty. I wore probably one too many layers but I'll know better tomorrow.

While the NYC schools opened two hours late all morning pre-K programs were out right cancelled. So the kids and some school friends convened at our apartment along with their caregivers or moms. I missed this but heard it was a hoot.

Emotional Blackmail - # 3 - They Received It...

I received back from the cryobank confirmation that they received our request for a lifetime photo package from our now inactive donor. I figure it will be at least a few months from now before we hear anything to give them time to "look" for the donor. My wife figures that if they have the donor's social security number (from when he was compensated for his stuff) they can easily locate him. I am not so sure it is that easy. Anyhow it's now out of our control and we just have to wait.

Family History & Safe Deposit Boxes: Preserving Our Donor’s Known Info

Well today our donor officially joined our family history via my putting the following documents in our safe deposit box: his bios (hard copy and on CD), toddler picture, and voice recording (CD). I finally made copies of the voice recording the other day and finally got to the bank. While there I cleaned up and better organized our files in our box. We actually have a larger box at about 18” depth by 10” width by 6” height.

I originally got the box as I have a number of family history documents that I did not feel comfortable keeping at home (I survived an apartment fire years ago – it wasn’t as dramatic as it sounds but it’s something I still worry about). The larger box was needed as some of these documents could not be folded. I also keep back up copies of all our family pictures on CD rom in the box.

For a while now I have been meaning to get the donor stuff into the box to theoretically ensure its safekeeping. I say theoretically as my office mate used to have her box in a bank branch that was on the concourse level of the World Trade Center, enough said on that. Anyhow I now have duplicate copies of everything and the original picture (the copy we were sent) and the voice recording interview are in the box.

While organizing the box better I had intended to put the donor stuff into it’s own folder but I ran out after assigning one each to the kids and one jointly to my wife and I. So I figured I’d just combine the family history stuff and the donor stuff into one folder. Jointly these documents make up my kid’s history as we know it so it made sense.

Emotional Blackmail - Part Two - I Mailed It !!!

I finally mailed, via certified receipt, the inactive donor request form to the cryobank. It had been two weeks since I got the form notarized but I kept not getting to the post office to mail it. Maybe that means something. My wife said it just means I did not want the cryobank to have any more of our money. It's a long shot if they find the donor and if he then agrees to the lifetime photo series thing but we had to try. The whole thing could take months I suppose and I believe the entire charge will be sitting on my credit card until then. Amusing. Again if it turns out to be a bust we only lose the $300. Not a huge amount but still this time of year every penny helps.

Donor Audio CD - I Began to Listen.....

Late last night I finally dug out the audio CD recording of the Donor answering questions posed by the cryobank. I played the CD to check it was still good towards my goal of making copies and to get the original into the safe deposit box. From the 4-5 minutes I heard of the total 24 minutes noted he sounded normal and quite intelligent. My wife was also in our living room while the CD played and she asked if I felt threatened to which I answered no but then again I am exhausted so I am not totally sure. As I said he sounded like a regular guy and I'll probably listen to the rest later this week perhaps on the bus to work although that sounds strange to me now. It's late and I need sleep.

“I Want a Brother” & Trying to Explain Half Siblings

Yesterday and again today my son stated he wanted a brother. He knows he is the big brother to his sister but he wanted a [little] brother. When I asked him why, he stated that since he is the big brother there should also be a [little] brother. He also stated that he wanted a brother to hold and love and that his sister is now too big. Part of this may have resulted from our family visit to my sister's house and her two daughters, who are cousins to my kids (not in blood but by family) and his seeing their large doll collection (including American Girl and Bitty Baby).

I took this as another opportunity to review that he and his sister are here due to the help of a donor. I also reminded him of the photos we saw in the NY Times (Nov 20th) of the children and teenagers that were related through their common donor. I thought that if I then drew out our family on paper and then showed him graphically (stick figures) that the donor may have helped other families I would be better able to show him that there may actually be other children who are here due to the help of this same donor. I tried explaining again what a half sibling is but this time he did not seem either to get it or be interested.

He was having more fun naming the fictional children on our pad. So at the current time my kids have 5 mythical half siblings with the following names: From Family # 1 (a heterosexual couple with four kids) boys Fred and Fud and girls Ted and Tud. Yes, we read a lot of Dr. Seuss. From Family #2 (a choice mom with one child) a girl named either Did or Didi, I wasn’t sure what he said. At this point he was giggling so much that the issue was no longer the point but the silly names were. We had a ball laughing which was a lot of fun despite the lost opportunity

He still wants a brother. I had no intention as part of this exercise to tell him that he and his sister already have one known half sibling, a little girl. Maybe someday he’ll find out he has a half sibling that is a boy but for now he only knows to ask us if we’ll have another baby to get him a brother.

[As an aside financially we could not even think about another child and we don’t really want to go down the road of having three where one is always the middle child etc].

(1) Another Why Post (2) Found Other Male Written Fertility Blogs

Over the last two nights I found by accident a donor egg (DE) blog and discovered the world of female written infertility blogs. There are a lot of them out there and most of them list all of the other DE blogs they visit or know about. Sort of a sisterhood of shared pain which I can relate to from our years of infertility treatments. Anyhow mixed in with these listings I found a few links to male written blogs. None of them appear to be from men who have successfully used DI but it proved that other men are out there willing to discuss their infertility issues of their own or that of their marriage. I will try to add the links to all these blogs tomorrow as my kids are waking up after falling asleep in the car after our drive home from the burbs. It could be long night.

Oh, I almost forgot the "why" part. My wife asked again why am I so obsessed with the topics of DI/DC and infertility especially since we have two great smart gorgeous healthy kids. My short answer (as I need to shut this down) is and keeps coming back to my meeting the few adult donor conceived individuals in Toronto and my fear that my kids could someday have that pain. It is why I blog, why I am involved in trying to start a national US donor conception support organization and my recent decision to be part of an effort to draft model rules of ethics / operation for the sperm banks. We just knew so little when we started down the DI/DC path. Now that my kids are real and luckily for them so far healthy etc I have no right to sit on my laurels just because they are healthy happy etc as they just as easily could not be. I am beginning to rant so it's time to shut down.

No Meeting of Half Siblings This Weekend.

Unsure of what was going to happen this weekend I rented a car for two days. Today, Saturday, we had a birthday party for one of my nieces out in the suburbs. If the kids were going to meet it was to be tomorrow somewhere in NJ where they were to be staying or somewhere in between. This afternoon we found a voice mail message that was apparently left last night on our Verizon voice mail while I was on-line. [Another reason to get DSL or a second line]. For reasons unconnected to our "what to tell issues" they are not coming North for their unrelated event.

We were disappointed but figure / hope to meet perhaps now in the Spring when all the kids are older and maybe this issue of how to introduce the kids will be easier to resolve as the half sibling will be older as well. It was just as well as today's driving left me exhausted and I am unsure how I would have handled two days of driving and car packing for two kids.

More Info on (3) Contact at Point of Purchase with the Sperm Banks re Donor Information

Some of this was addressed in my earliest posts back in August 2005. The following is the third part of an email interview I participated in with a journalist friend Mikki Morrissette (note I have removed the actual names of the sperm banks):

3. What kinds of conversations did the clinic or bank have with you (if any) about issues beyond simply the process of conceiving....such as donor identity/anonymity, openness about origins with the child, half-siblings in geographic area, reporting successful pregnancy so a donor can be retired at a particular limit?

Simply put we had no conversations with the clinic or the bank regarding issues beyond the process of conception. We were seeing a psychotherapist regarding the effects of the whole process and my own infertility upon our marriage. The therapist recommended a few DI related book titles but to be honest I don’t recall our discussing the issues in detail regarding post birth. We touched on the disclosure / openness issues but to be honest the sessions were focused first on our pain. Also I think we were even at that point pretty sure we planned to tell the children as the books were clear that issues would fester if we did not tell.

Added for this post re Donor Medical Information:

An issue recurring on the DSR_Discussion group right now involves holding the sperm banks accountable regarding known or unknown medical issues of the donor. I will not go into great detail here but the gist involves what responsibilities do or should the sperm banks have to test the donors during their pre-screening processes. And if the sperm bank claims the donor has been screened and tested negative for a potential hereditary disease that could be passed along to the conceived child what recourse is available if the child does eventually test positive for that disease.

In our own donor's case based on the medical profile we purchased the donor was tested for the following diseases as part of the screening process and found not to be a carrier of any of them: Cystic Fibrosis, Alpha-1 Antitrypsin Disorder, BRCA -1( breast and ovarian cancer), Tay Sachs, Gaucher, Canavan, and Thalassemia.

I will admit here that we did not question at that time how these tests were administered or the assays involved in their determination that the donor was not a carrier of any of them. We did take comfort and assurance of this info as the medical profile / questionairre was supposedly completed by the donor and his statements were that he was tested during the screening process and found to not be a carrier of any of those diseases listed here. Our assurance was further bolstered by the fact the donor himself had medical training.

Looking back our not asking how these tests were administered etc. was naive and I encourage all individuals to ask for more information. Thinking back on the process I don't even recall what form of documentation existed (i.e. contract etc.) that would have had language addressing legal recourse for any related issues (granted since it would have been the sperm bank's document it would have protected them).

We May Meet Their Half Sibling This Weekend?

We have been trading e-mails with the mom of my kid’s half sibling as she may be coming into the NYC area this weekend. This resulted in both families getting back into our unfinished discussion of how we would introduce the kids to each other.

My wife right now wants to be direct and upfront with our son as to who this little girl is. Her mom wants to hold back at the moment and just introduce them as special friends who share a special connection. We are at an awkward point as both families want to protect their kids and not take away from how special this occasion will be and mean in their lives. We (my wife and I) have suggested that we delay the meeting until we are all on the same page as to what to say to them. Again this is awkward and your emotions run high. [More so as I know she reads this blog but these thoughts and comments need to be part of this blog’s story.]

More Info on How We (2) Chose the Donor

Again Some of this was addressed in my earliest posts back in August 2005. The following is part of an email interview I participated in with a journalist friend Mikki Morrissette (note I have removed the actual names of the sperm banks):

2. How did you decide on the particular donor you used? DI dads tend to be interested not at all in the donor profile information. [According to the sperm banks] most of the interest in that detail comes from single women in particular (and to some extent wives) and that husbands tend to not want to think of the donor as a real person. I'd like to get your view as well on what you considered in making donor selection...did it feel threatening? Did you pore over the details, or tend to dismiss them? Was the ultimate goal simply to find someone who looked like you?

I will admit I actually was quite involved in the initial rounds of weeding through many of the details. After I narrowed down the available Jewish donors by blood type, heritage, and educational background we ordered the available detailed health and social bios as well as the voice recorded CDs where available.

At that point because there was no child I had no problem thinking of him as a real person. As a pretty active amateur genealogist I think I probably looked at the details much as I do when I find data on missing individuals in family trees. Without that background my reactions may have been different. I think as the donor would be 1/2 of what makes my kids I also took it extremely seriously.

The details actually fascinated both me and my spouse but I can see the sperm bank director's point. I will admit there were also a few wild conversations. One donor whose physical and heritage backgrounds came close to mine worked as a parking lot attendant and my wife kiboshed that possibility as this was not some part time job for that guy. Education was a big deal for us and we even selected a donor from Sperm bank DEF's premier education group which added to cost.

Our goal was not simply to find someone who looked like me. Although I believe the sperm bank now offers the service of comparing the social dad-to-be’s photo to the donor. Our main points as discussed above were religion, blood type, and education. We had intended to improve on my family’s medical history but the donor we chose has a family medical history no better than my own in the end.

More Info on How We Chose: (1) The Sperm Bank

Some of this was addressed in my earliest posts back in August 2005. The following is part of an email interview I participated in with a journalist friend Mikki Morrissette (note I have removed the actual names of the sperm banks):

1. How did you decide on the sperm bank that you used? (And DI Dad, remind me, how many years ago was this? Two?)

We first started with ABC back in 1999 and at that point the donor sperm was to be a backup to a testicular biopsy I was to undergo in support of an IVF-ICSI cycle we were attempting here in NYC. We chose ABC due to the variety they had and to be honest the IVF clinic we were using suggested them, DEF and maybe a few others. Being dumb and not given any real support we went to the banks the clinic suggested rather than doing a lot of research on our own.

We actually started with one ABC donor and then switched to a second donor but when his samples were no longer available we restarted our whole selection process. One of our most important concerns was to ensure we could secure enough vials to create over time two full siblings from the same donors and that was no longer a sure thing with the donors we found at ABC. Their selection of Jewish donors was quite small and we were not thrilled with the ones we saw.

When these initial IVF cycles failed (using my own scant few sperm) we started looking at DEF (around late 2000) and again as it was one of the sperm banks the “experts” suggested and again we figured they knew best.

Our selection process was our own and mostly focused on matching the donor’s blood type, heritage, and somewhat his physical characteristics to my own. We had no help from anybody at the IVF clinic or from the sperm banks.

Again at DEF our most important concerns were the donor’s characteristics (physical and education) and religious background and most importantly the number of vials available.

[Subsequent posts related to this email interview will include: (1) What the Sperm Bank told you re Post Conception Disclosure Issues and (2) How We Decided on a Specific Donor]

Too Painful to Listen to the Donor’s Voice….Not Yet Anyway….

A Choice Mom friend who is also a journalist working on an article sent me various questions to answer regarding how my wife and I chose our donor. As part of that selection process 4+ years ago my wife listened to a CD voice recording of the donor (and other potential donors) before we selected the donor we used.

My wife remarked last night that I still have not listened to that CD and she wondered if I am threatened by it. I was not sure how to answer. I don't believe I am but right now I guess I'd rather leave "him" as a theoretical being rather than have his voice in my head making him real.

Granted I have seen a photo of him but in it he is only a toddler. He was too cute to be threatening. As discussed in my post titled “Emotional Blackmail” we are currently attempting to purchase a set of “lifetime photos” of the currently inactive donor which if successful would include photos from childhood to adulthood. Am I ready to see these? Like the voice recording probably not yet.

Again the question is: Am I threatened by this individual? Possibly but the real reason I think is once he becomes real it just drudges up the pain of my not being able to biologically be part of the creation of my children (and that he was) and pushes my connection to them one step back.. I know these thoughts are silly but they are my feelings.

Concerns re Donor’s Desire for Contact

My parents watched last Sunday’s live interview on CNN with Wendy and Ryan Kramer regarding the DSR. Besides my parent's views that finding half siblings will only complicate our lives they were concerned with the possibility that the donor would want to make contact with my kids and how that would affect my relationship (emotional and legal) to the kids.

Where the DSR does have about 200 plus donors registered as being interested in making contact with offspring it’s still quite rare and I expect our donor is not interested. That is not say that he has not checked out the Registry to see if he has helped bring any kids into the world. Heck, I’d be curious if I was him. But I don’t expect to learn that a match was made on the DSR between our donor and us. I admit I am hoping this never occurs.

How would I react if this did occur? Shock I guess at first. Would I feel a measure of being threatened? I’d be less than truthful if I said absolutely not. But I know my kids are my kids and I am their daddy so any fears would be softened by that knowledge.

It would certainly bring up the issues sooner to determine what the three year old truly understands. At this point due to the ages of my kids I certainly would allow no contact with my kids but I would inquire as to what if anything the donor is interested in pursuing and I would ask for more detail as to why he did become a donor.

She's Nature....I'm Nuture......

Being a Dad to DI Kids gives additional meaning to comments like:

"they're your kids....."
"he didn't get that from me..."

Sometimes these innocent comments just mean so much more as compared to when they are said by regular parents. Not saying plus or minus but just added meaning. But if I did something wrong saying either of the above to my wife certainly does not get me off whatever hook husbands end up on. As comments go they are fun to say around company who do not know the whole meaning.

Told another friend yesterday….

I think I surprised him a bit. I had called him for legal advice and as a tangent mentioned the DSR article from last Sunday’s NY Times. I guess I thought I had told him about how my kids were conceived. All of my friends are aware that we went through multiple IVF cycles and most assume that is how the kids were conceived. Granted we did nothing to dissuade them of that belief.

Anyhow we started to discuss how the whole process works and the anonymity of the donors etc. I explained how via the DSR works and how we found my children’s half sibling. He could not imagine the whole thing. I have been living with the concept / reality of DI since my son was conceived that sometimes I forget how it sounds when you first hear of it. Pretty wild.

Pink Eye, Conjunctivitis (post # 51)

Today it became official my whole family now has pink eye. This has been the month from hell due to one play date with a kid whose family doctor thought this was not contagious after 24 hours with the antibiotics. I‘d like to slug that doctor.

Too many hours at the eye clinic, washing bedding daily, and trying to get a three year old to stand still for eye drops. And now the kicker the doctors at the clinic prescribed an ointment we are supposed to put on my 17 month old’s lower eye lid twice a day. That will be an experience.

So if you hear the father of a kid who is at your house for a play date say that his kid had pink eye but it’s not contagious, but he is stil taking drops, announce the play date is over, ask them to leave immediately and reschedule by phone.

Questions to All Readers of this DI Dad Blog :

I have a few questions for the readers of my blog if you can answer them it would be interesting to see the responses:

(1) Are you considering DI or have used DI to help create your family?
(2) Are you a DI Dad, DI Mom, Birth Mom?
(3) Are you part of (1) a married hetero couple (2) Choice mom (3) LBGT family?
(4) What part of the country are you from?
(5) How did you find my blog?
(6) Have you read the NYTimes article published 11/20 linked to below? What are your thoughts?
(7) Do you think we need a national US based Donor Conception support organization here in the United States?

and

(8) What questions do you have for me as an open Dad to DI Kids?

Thanks,

DI_Dad

Sibling Matches at 1098 at the Donor Sibling Registry

The activity at Wendy and Ryan Kramer's Donor Sibling Registry these last two days since Amy Harmon's front page Sunday New York Times Article has been staggering. As of this evening the total number of matches is now at 1098. That's 88 matches since early Saturday evening when links to the on-line version of the article started being diseminated across the Internet. The activity is amazing when you realize that the site has been active for more than 3 years and this increase is over just the last two days.

Based on e-mails to and posts by Wendy on the DSR Yahoo discussion groups she has been at her PC non-stop (when she isn't at her "real" job) and Wendy deserves our applause and our committment. If you can this holiday season please stop by the main DSR site (linked through the title to this post) and make any donation you can no mater how small. The DSR is purely funded by individuals and truthfully mostly by Wendy through her determination, labor and love.

Again our gratitude and thanks to Wendy and Ryan !

Links to FULL texts of last five Posts of "Life as Dad to Donor Insemination (DI) Kids"

As a workaround to my technical issue here are the links to my last five substantive posts. Note that on these linked pages you will have access to earlier posts as well....

http://di-dad.blogspot.com/2005/11/nytimes-2005nov20-hello-im-your-sister.html
http://di-dad.blogspot.com/2005/11/emotional-blackmailbut-ill-pay.html
http://di-dad.blogspot.com/2005/11/infertility-affected-my-marriage.html
http://di-dad.blogspot.com/2005/11/american-donor-conception-new.html
http://di-dad.blogspot.com/2005/11/update-why-do-i-blog-re-being-dad-via.html

Hopefully this problem will be fixed soon....

Blog Experiencing Unknown Technical Difficulties

I am not sure what happened to my blog this evening. Even after republishing a few times I cannot seem to get the sidebar back which includes my profile, links, archive links, as well as my links to various blog direcories etc. To say I am crushed and confused is an understatement. The only good news is that through Blogger I copied the text of all my postings onto my home computer and will burn to CD later tonight. If I have to replublish under a new URL so be it that would be a problem.

Somehow I must think something happened to my source code but I posted entries two night ago without any issues so I am confused what happened. More later.

Moderating Comments to Blog Posts....

Up until this evening I had not wanted to get involved in moderating comments to this blog. At times a number of Marty's comments had been bordering on harrassment but in the past this had all been directed to me. I usually let it go, despite my feelings of being attached personally, as mixed into his barbs were some, I thought, provoking questions worth exploring.

But tonight the barbs were not directed at me but readers of this blog who felt compelled to comment on my posts. And after reading those comments I felt the barbs crossed a line as I invited these readers into my thoughts and I felt I was responsible. Now granted I was not and the individuals being bombarded handled themselves quite well. But I am now considering moderating the comments posted which is a shame. Despite the fact this is a personal web log and not a public public discussion group I have enjoyed the interaction.

Individuals need to learn that their points can be made without harrassment even if they vehemently disagree with the positions being espoused.

NYTimes: 2005Nov20: Hello, I'm Your Sister. Our Father Is Donor 150

Tomorrow's NY Times cover page features an article regarding half siblings finding each other and meeting at various ages. Most if not all of the families referred to and quoted from in the article found each other through the Donor Sibling Registry which this week hit the milestone mark of matching up 1001 half siblings.

It 's a great article for several reasons including the donor conceived individuals desire to connect in whatever form to their biological origins beyond that of the mother. The article never preaches regarding the disconnect that is created via the utilization of DI nor was its intent to do that. The article addresses the connections made via the personal side of the meetings. Most of the meetings discussed involve toddlers through teenagers.

The fact that the NY Times placed this article on the front page is a telling point in my mind that the issue is becomming to be less stigmatized and more open to discussion. Granted the discussions are sometimes quite heated (see the comments to my immediate prior post "Emotional Blackmail....").

I am only hoping that the author, Ms. Harmon, continues this series and at one point address the DI Dads. Her earlier piece published on October 13, 2005 was titled "First Comes the Baby Carriage" and focused on women who chose single motherhood.

Emotional Blackmail....but I'll Pay.....

Within the last week or so, there were several posts to the DSR yahoo group where I learned that the cryobank we used is offering photo packages of the donors including infant photos up to grown up photos (the term adult photos caused email problems for some DSR members - what a world!). These photo packages are being offered for a modest amount (not cheap but when compared to what we paid over time for IVF etc....) when the photos are available for active donors. The costs jump if your donor is currently inactive. The amounts being asked come close to emotional blackmail or extortion but as we live in a consumer nation the amounts are asked for and they'll get it from others and most probably from me.

Now before I discuss the costs or my reasons that I''ll probably pay what they ask I wanted to say that I am confused why the donors would provide these photos. Don't get me wrong I am thrilled that they are doing so but my thoughts were if the donor wanted to chance some kid searching and locating him and then making contact why would you give out your picture to help in that search. And if you are so willing to provide the photo which could lead to you why donate to a cryobank that does not engage in a program that offers the opportunity to disclose hte donor's name when the kids turm 18. Very strange. Maybe they are offering this info now. I'll have to check.

OK, back to the amount being charged. It's a three part fee system. First there is a NON-REFUNABLE charge of $300 so even if they locate the inactive donor and he is not interested in providing lifetime photos the cryobank gets to keep the $300. The cost of the photo package itself for about 5 to 7 photos, near as I can tell, is another $500. On top of that is a $150 processing fee. Now before they'll try to locate the inactive donor they want the money up front. No checks just credit cards or actual currency (money orders, bank checks etc). Now granted if the donor is not interested they'll refund the $650 but you still paid $300 for the chance.

Lastly why I will ending up paying these fees. My wife put it this way. If we were our kids and they knew we had the chance to secure these photos would they be upset if we did not try. We both agreed they would. For al we know the kids will not even want to know any info about the donor but we think if they ask we should have whatever info we have. And for us that is why we'll end up paying despite the fact that it's emotional blackmail.

My wife figures next year we'll hear that the donor's address will be offered for $10Gs. My reaction to that was a pillow thrown at her.

Infertility Affected My Marriage....

Tonight on the Yahoo DI Dads site I posted a message somewhat personal. I thought to copy and paste it here to the blog but decided against it. All I will say is that right from the start of my marriage the infertility infected me and I pulled away from my wife causing her great pain as well as to myself. I could not control that pain.

Tonight my post to the DI Dads asked men like myself if their relationships were / are similarly affected by the infertility. Over the years my wife and I discussed my pain and when we attended therapy as a couple it certanly was discussed but somehow being in the discusion group with men who are going through what I went through brought it all back and I wanted to know, needed to know, if my reactions years ago were normal as defined by men who shared that same pain.

I am assuming the answers I get back will be yes, although I am not sure. Just the asking was somewhat carthartic whatever the replies.

American Donor Conception - New Organization

I have been discussing the idea of starting a new US based donor conception support organization with several individuals since I have returned from the Toronto Symposium. Many agreed that we need a US based group. I have shared some of my own thoughts about the need in previous posts. Since that point I have reserved the domain name and created a parking page at the site address linked to above.

My goals at this point are not to duplicate the efforts of individuals like Diane Allen of the Infertilty Network by any means but to create a US based portal from which the Donor Conception Community here in the USA can perhaps unite if not in methods or goals but as a community of respect. I would hope that over time we can provide support to the level of the UK based DC Netwok or the Australian Donor Conception Support Group but this is for the future to see.

My first project will be to contact as many of the US based organizations that deal with facets of DC to gauge their interest and to solicit their participation for perhaps authorized intro articles or blurbs that can be posted to the new ADC website.

What are your thoughts on this idea and what would you want to see from such a US based organization? Please let me know either here or via Info@AmericanDonorConception.net.

Update: Why Do I Blog re Being a Dad via Donor Insemination?

My wife asked me this evening why am I fascinated by this topic? Her second question was do I still hurt by it?

I answere the second question first. I told her that for the most part any pain is gone but some small part of me wishes our kids were mine biologically as well. I certainly don't want different kids. If biologically I was able to have kids these two kids would not be here and that would be a loss as they are perfect to me (granted the three year old pushes his luck sometimes).

My purpose at this point I told her is that I wish there was no stigma and that the issue was as open as adoption. I hate the secrets. The term disclosure itself sucks and that is why the term openess is preferred. I want others to feel OK about their decisions and to focus more on raising the kids while at the same time be cognizant of the consequences of these actions. Everyone should be aware that DI creates individuals not just babies and the responsibilities for that individual are more involved than simply creating a baby. I have discussed this in earlier blogs.

At the same time I want to let other dads (and families) see what one man and his family are thinking about so if they are considering DI or are already there they can see my thoughts and then say that was my concern too and it was not such a silly or minor thought after all.

On the flip side I don't expect this blog to solve anyone's issues but if it can be catalyst in any form that's great. But realistically in the end the blog is just a personal web log for me to rant and rave to myself and get my thoughts off my chest.

Why would they change our favorite diapers?

Why is it after you come to rely on a product they decide to "improve" it and then they end up screwing it all up? We've been using Seventh Generation disposable diapers for our kids these last couple of years and became quite dependent on the brand. But then they went and "improved" it and now it just doesn't absorb as much as the brand used to.

If we get two hours out of a single diaper with my daughter we are now thrilled. Granted our goal was not to leave her in a dirty diaper for hours at a time but now every morning her PJs / fleece sleep clothes are soaked through.

I just don't get it.

Misdirected Anger ?

My “occasional” misbehaving three year old has a magical ability to bring out my bad temper. I never really thought I could lose my patience so fast but I can as he has proven to me. Sometimes when our son is misbehaving I tend to punish him too much (i.e., the naughty corner) and other times I have grabbed him too hard startling him. These occasions generally result when he is not responding to me when he continues to act in a defiant manner or is just not listening to me when I have told him to stop doing something (like running away from us in a store or at home when he continues to take toys from his sister) or he has not listened to his mother after her asking several times. The occasions that really get my goat involve his sister and he is being annoying just he wants what she is playing with.

I realize he is just being a normal, at times difficult three year old, and I don’t mean to lose my temper or overreact but I sometimes do. I feel terrible when I have scared him by yelling too loud or perhaps squeezed his arm a bit too much when trying to get his attention. I have wondered how much of this is just me (needing to get a handle on myself) or something else. I love these children with all my heart and I never want to do anything to cause them harm but occasionally I just get angry. Am I the only parent to lose it? Most likely not.

I recall the anger I felt when I learned about being infertile. I don’t doubt that some measure of that anger still exists in me. I don’t think any of this anger is coming out when I am dealing with my son but I wonder. DI as a method of dealing with male factor infertility is certainly nothing new but I wonder how many dads underwent any psychotherapy before deciding on DI and addressing the anger that comes along with being told you can not biologically have kids and not have kids at all without help. This topic was addressed within a few posts to the Yahoo DI Dads site but with only a few members joining the discussion it is hard to generalize.

[On a related but separate issue I am beginning to think that prospective DI parents should go through some sort of required home study, similar to potential adoptive parents, before being allowed to commence DI – but that is for another posting.]

Before we were successful we did see a therapist regarding our issues generally dealing with infertility and I know we addressed the anger issue but I don’t recall now how that concluded. My wife has us signed up for some sort of class that focuses on parents and anger and managing our kids without them driving us crazy and our not yelling at them too much. It sounds like a good idea to me.

Told My Sister re Half Sibling

Yesterday we were at a family bat mitzvah for the daughter of one of my first cousins. For some reason while there I asked my sister if I had told her about the fact that my kids have a half sibling. Her reply was something like “what?” I guess the answer was no.

Anyhow I described how we found the half sibling via the DSR and then my sister asked how is it possible [that there even are half siblings?] She apparently thought when we used this donor that no one else was allowed or could use him. She probably thought that there were some type of restrictions but I did not pursue that line of thought. I explained further that we did not buy out all his vials and that as long as the supply was available others could purchase the remaining vials.

I then indicated that I knew the half siblings given name and had been in touch with her family even exchanging e-mails and pictures of the kids. She asked if our son had seen the picture to which I said not yet. I don’t think she was totally shocked but I think it was certainly a learning experience.

While this conversation was going on my son, the older of my two, and his cousin of about the same age were having a ball with each other running around the dance floor and chasing after my “toddler” as she crawled around the dance floor herself .

It’s Standard Time – An Hour More Sleep? Yeah Right.

Whoever said that when the clocks return to Standard Time from Daylight Saving’s Time we get an hour more sleep obviously did not have very young children. Children that used to get up at 6:30 am everyday now wake up at 5:30 am everyday.

If one more person says the children will adjust and you’ll get back into a normal sleep / wake schedule I’ll hit them. My hope is at least they will go to bed earlier to make life easier for my wife but then again it will be harder for me to get home to see them off to bed. Either way it does not work easily.

If your kids are young you know what I am talking about here. If you don't, enjoy your sleep.